Past Events

A-LiNK Community Conference

Aired on 8.29.2020
FREE
A-LiNK Community Conference
THIS EVENT IS FOR PATIENTS AND THEIR FAMILIES

This conference is sponsored by the Center for Autoimmune Liver Disease (CALD) at Cincinnati Children's Hospital Center and will offer a comprehensive discussion and update on the ongoing development of a pediatric AILD-specific learning health system (A-Link) within the existing infrastructure of ImproveCareNow. In which healthcare, continuous improvement, technological innovation, social infrastructure, and research are purposefully integrated.

It is our hope that you will be able to interact as scientists, patients, families, physicians, stakeholders, and advocates to identify the best practice variability relating to treatment protocols and develop outcome measures to form the basis of future efforts.

Description

Faculty

Faculty

Noelle Ebel, MD

Like a child, the liver is resilient. My foremost goal, as a highly specialized doctor, is to improve the lives of children with liver disease by providing expert care and making meaningful contributions in both research and clinical practice. It is a privilege to return children with liver disease to their best possible health.

Emily Perito, MD

Dr. Emily R. Perito is an associate professor at UCSF who specializes in pediatric liver disease and liver transplant. She is jointly appointed in the Departments of Pediatrics and of Epidemiology and Biostatistics. Her clinical care and research focus on optimizing long-term outcomes for children, adolescents and young adults with chronic liver diseases, including autoimmune hepatitis, primary sclerosing cholangitis, and other diseases. She is currently Vice Chair of the United Network for Organ Sharing’s Pediatric Transplantation Committee and of the Society for Pediatric Liver Transplant’s Advocacy Committee.

Alexander Miethke, MD

Dr. Miethke completed medical School at Humboldt University in Berlin Germany, residency, Fellowship and Advanced Transplant Hepatology Fellowship at Cincinnati Children’s. He joined the faculty at CCHMC in 2009. He is a Director of Transplant Hepatology Fellowship Program and director of Center for Autoimmune Liver Disease. His research focuses are on autoimmune liver disease.

Alex Weymann, MD

Dr. Weymann is the Dir. of the Liver Center and Med Dir. of Liver Transplantation at Nationwide Children’s Hospital; and an asst. professor of Clinical Pediatrics at The Ohio State University. Dr. Weymann is certified as a Pediatric Gastroenterology, and a Pediatric Transplant Hepatology. He has published research on biochemical and metabolic mechanisms of liver regeneration and on molecular transport across liver cell membranes. Dr. Weymann has a special clinical and research interest in liver disease in cystic fibrosis and has been a principal investigator in the multicenter Cystic Fibrosis Liver Disease Research Network (CFLD-NET).

Chris Browner, RN

Chris Browner is a graduate of Denison University and has a master’s degree in education, focusing on, agency and community counseling from Xavier University. She earned her BSN from Xavier University. Chris is the Program Manager for the non-profit, 1N5, a mental health education & advocacy organization aimed at reducing the stigma of mental illness. In 2013, her then 13-year-old son was diagnosed with autoimmune hepatitis (AIH) and primary sclerosing cholangitis (PSC). Since then, Chris has been a passionate advocate for children with autoimmune liver disease.

Gillian Noel, MD, MSc

Dr. Noel received her MD and Msc in clinical Science from University of Colorado in 2010 and 2016 respectively. She did her residency and her fellowship in Pediatric Gastroenterology, Hepatology, and Nutrition from University of Colorado. She did her fellowship in Advance Transplant Hepatology from Emory University School of Medicine in 2017. Dr. Noel’s special areas of interest include autoimmune liver disease, biliary atresia, progressive familial intrahepatic cholestasis, and health disparities.

Shehzad Saeed, MD

Shehzad A Saeed, MD, FAAP, AGAF, NASPGHAN-F is currently a Professor of Pediatrics at Boonshoft School of Medicine, Wright State University, and Associate Chief Medical Officer, Chief Medical Value Based Care Officer and Physician Lead for Patient and Family Experience at Dayton Children’s Hospital and Chief Medical Officer, Dayton Children’s Health Partners, and the Clinical Director of ImproveCareNow (ICN) Network.

Jim Squires, MD, MS

Dr. Squires received his Medical degree from the University of Texas Medical Branch, residency, Fellowship and Advanced Transplant Hepatology Fellowship at Cincinnati Children’s. He is a recipient of the ‘Well-Rounded Resident Award,’ awarded by his peers for exhibiting a balance of clinical skill, education, leadership, and research throughout his residency. He joined the faculty at Children’s Hospital of Pittsburgh. He is a member of the Studies in Pediatric Liver Transplant (SPLIT), member of the NIDDK Childhood Liver Disease Research and Education Network. His research focuses on pediatric liver diseases and pediatric liver transplant.

Amy Taylor, MD

Pediatric hepatology; autoimmune liver disease, acute and chronic hepatitis, cholestatic liver disease, and pre/post-liver transplant care Pediatric gastroenterology

David Haslam, MD

I’m the director of the Antimicrobial Stewardship Program and the Microbial Genomics and Metagenomics Laboratory. I've received several teaching and research awards, including the Pediatric Infectious Disease Society Young Investigator Award. The main focus of my research is on the microbiome, which is the community of bacteria, viruses, fungi and other organisms that live on the human body. The goal is to understand how the microbiome influences disease and contributes to health in children. A healthy microbiome helps protect against infection, allergy, gastrointestinal diseases, heart disease, diabetes and diseases of premature infants.

Agenda

10:00 am - 10:45 am
Late-Breaking Session: COVID-19 and Autoimmune Liver Disease
Pediatric Infectious Disease Specialist; Pediatric Hepatology; Patient/Parent experience; Live Question & Answer.

10:45 am - 11:00 am
Break
11:00 am - 11:10 am
Welcome and Introduction
11:10 am - 11:30 am
Autoimmune Hepatitis: New Advances
11:30 am - 11:50 am
Primary Sclerosing Cholangitis: New Advances
11:50 am - 12:10 pm
Outcomes in Autoimmune Liver Disease
12:10 pm - 12:30 pm
Break
12:30 pm - 1:20 pm
BREAK-OUT A
Data: Quality Improvement Methodology in Practice
12:30 pm - 1:20 pm
BREAK-OUT B
Engagement: Building an Active AILD Community
1:20 pm - 1:30 pm
Break
1:30 pm - 1:50 pm
Parent Perspective
1:50 pm - 2:10 pm
Addressing Disparities in AILD
2:10 pm - 2:30 pm
Integrating Technology into Clinical Practice
2:30 pm - 2:40 pm
Break
2:40 pm - 3:30 pm
BREAK-OUT A
Autoimmune Hepatitis: Defining Outcomes
2:40 pm - 3:30 pm
BREAK-OUT B
Primary Sclerosing Cholangitis: Defining Outcomes
3:30 pm - 3:40 pm
Break
3:40 pm - 4:10 pm
Group Discussion Debrief
Autoimmune Hepatitis; Primary Sclerosing Cholangitis

4:10 pm - 4:25 pm
Wrap-Up